Archive for the ‘david’ Category

what if?

December 2nd | david, finding beauty, thoughts

the other evening after tucking the boys into bed, steve came downstairs and said, ‘i just had the most surreal experience. i was telling david to lay down and kissing him good-night and as i looked at him i saw a nine year old boy–no disability. just david. it was like our souls had a connection.’

as soon as he described the interaction the tears began to roll down my cheeks. i knew exactly what he meant–there are times, moments, i see beyond david’s disability and into his soul. and i see a little boy stuck in a body that won’t cooperate with him. i see him wanting to speak words and unable to get them out. i see him wanting to tell me something, to ask for something or describe something but there is a chasm between us and it’s too wide to cross.

i’m blogging over at {in}courage today. hop over and read the rest of the post here…

fear and finding peace

November 8th | david, inspiration, thoughts

Things have been a little crazy around here for the last couple months. It’s mainly focused around David’s burst of new activity and trying new things. It’s incredibly exciting so see him climbing stairs, standing on tables {yikes} and clearing out the cupboards. Every day it seems like he’s trying something new–and it makes my heart so happy to see him grow and learn and succeed.

But there’s another part of me that struggles with change. I have to watch him more–a lot more. The more independent he gets, the less independence I have. And while that’s a phase with toddlers and preschoolers, it will be likely be life-long for our family. The other day while I was driving to meet my sister I was trying to sort through all my emotions. Why am I not overjoyed with David’s progress? What is going on with me?

And then the word hit me like a ton of bricks. Fear. Fear that my life will stop and will completely revolve around his needs. Fear that as David gains independence I won’t be able to keep him safe. What if he climbs up something and falls down and really gets hurt? What if he opens a door when I’m not looking and gets out of the house? What if we’re no longer able to eat out or have friends over because David takes too much of our time and attention?

Recognizing my own fear helps to stop me from falling into a spiral. Today may be difficult in ways, but today is manageable. Today is beautiful. Today we are busy with David’s needs but I get time to sneak away and be with friends. We have people over for dinner often. I have time to create and dream and get inspired.

Last week I met Chrissie in Carpinteria for a sister day and it was like food for my soul. It was so good.

Time with her wipes away fear and helps me to regain perspective. Maybe since we are identical twins, I’m actually more myself when we are together? A day away last week was just what I needed to refresh, recharge and get inspired.  And truthfully, coming home I am ready to give all I am to my boys. I’m ready to celebrate David’s success. I’m less fearful and more whole.

We are all facing challenges in our life–small or big. How are you coping with fear and finding peace these days?

amazed by david

September 1st | an everyday moment, david, thoughts

my head is full of thoughts about this little boy.

while we were in england he decided to sneak out the back door, down two steps, past the side gate and into the front yard. steve and i were absolutely flabbergasted since david is very cautious around stairs and always wants help descending. i love when he shows independence, but it’s also concerning since we never know what he’ll do next!

earlier today i was reflecting on how much has changed in the last year. last summer david was fragile–constantly fighting colds and looking toward open heart surgery. i worried about him so much. now he is stonger, healthier and more energetic. he does new things every day and is communicating more and more. it makes my heart so happy to see him grow and explore–but it does worry me too. i feel like we have to watch him more closely. and we’ve been child-proofing the house even further–like replacing all our glasses with plastic tumblers. we also plan to install a gate at the top of our staircase.

today i am so incredibly thankful for david’s energy and adventurous spirit. and today i’m not going to worry too much. i want to let him be a kid and i don’t want to hover over him all the time. he is showing more independence–which means i need to let him have more independence!

today i’m amazed by david and what a miracle he is!

what i wore wednesday

August 31st | david, what i wore wednesdays

it’s wednesday and i’m linking up with lindsey over at the pleated poppy!
this is what i wore to church on sunday–super comfortable and a little different from what i usually wear. olive tee-thrifted. wrap skirt-outdoor indian market in santa barbara. boots-anthropologie. wooden bangles-vintage.

david wanted to get in on the action too. on david, button up and jeans-both old navy.

this fall i am on the lookout for a cute fitted blazer–either velvet or tweed and maybe floral cardigan. right now i’m really into mixing florals with polka dots or stripes.

if you had $200 to spend on something for the fall–what would you buy?

celebrating david

July 7th | david, events

tuesday evening we bbq’d with some friends to celebrate david’s 9th birthday.

i made cupcakes it a jar that didn’t turn out quite right–but they were tasty! the jars i used were too big. next time, it would be better to smash the cupcake in–it will look cuter!

david got a plasma car for his birthday. he’s been using one at school on the playground and he’s getting really good at scooting around on it. he needs some help steering, though.

david loved opening gifts. he smiled the whole time. and he got some great loot!

thank you friends for celebrating david with us! it was a low-key and very special evening.

david, you rock! i’m so thankful for you. happy 9th {yikes!!} birthday!

happy birthday, david!

July 4th | david, jewelry

it seems impossible, but david turns NINE today! nine years ago, this little boy came into our lives, turned everything upside down and changed us in beautiful ways.  he has taught us how to love and how to let go of pride. he’s taught us how things don’t always go the way you plan–and sometimes the harder road is so much better. so much more beautiful.

david, you are silly, determined, full of cuddles, naughty, adventurous and you’ve stolen my heart. i love you!

shop our silly monkey wall hanging–a portion of each sale goes to the cdls foundation. david was diagnosed with cdls when he was one day old and the foundation has been a huge support to us! click here to shop.

happy birthday, david!!

becoming a mother.

April 11th | david, finding love, thoughts

this morning as i was getting ready, i started thinking about mother’s day. i  thought back to that very first day i became a mother. because david was born with a disability those days were dark and scary.  i was afraid. we were grieving and trying to make sense of our new world.

the day after david was born, one of the neonatologists gave us david’s diagnosis. the words came out in slow motion. the sounds were there but i couldn’t comprehend their meaning.

cornelia de lange syndrome.

severe retardation.

he won’t be able to eat.

he won’t speak, he won’t walk.

he’ll need life long care.

my heart felt ripped apart as the words buzzed around my head trying to make sense.

i wonder what would have happened if that same neonatologist, in some prophetic way, could have seen our future. what if he would have told me things like,

he’ll change your world in beautiful and amazing ways.

he’ll show you how to love more deeply than you can imagine.

his smile will light up a room.

he’ll wrap his arms around your neck and and work his way into your heart.

he will run and laugh and love life.

you will know his soul and he will know your soul.

could i have heard those words? could i have understood them? looking back, i think steve and i had to walk through sorrow and watch hope grow. we had to grieve and fall in love with david–for who he is and not for who we thought he would be. we had to journey, step by step, to understand the amazing gift that was placed in our arms that day.

david, i am so absolutely, undeniably grateful to be your mom. i love you sweet boy!

david {loves} daddy

March 28th | an everyday moment, david, family

oh my goodness. this little boy sure loves his daddy.

and what’s not to love? his daddy is nurturing and fun and all around awesome.

i am so thankful that he is my kids’ daddy. i didn’t think very much about what kind of daddy my husband would be before we were married.

but i’m blessed. he’s a natural–so caring and loving. and of course rough and tumble.

when david was born i had so many questions. how will steve react? can we weather this storm? what will become of our family?

every day steve shows us how much he loves us and that he is committed to us.

david loves his daddy {and so do i!}

my happy place

February 8th | david, finding beauty

this week’s video answers the question, ‘where is your happy place’.
i gave it a lot of thought and the three things that make me happiest are
1. my boys  2. the beach and 3. creating something beautiful.

david and i went to the beach and played and the weather was so gorgeous i wanted to stay all day. here’s a little video of our time together. i think it turned out so lovely, i hope you’ll take a moment to watch it!
{music by nickel creek, ‘out of the woods’}

where’s your happy place?

answering questions {3}

January 25th | answering questions {videos}, david

this week i’m chatting about our sweet david and how he communicates with us! have a question you want answered? leave it in the comments section below.

{music is mmbop by hanson-classic!}